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15 years ago 0 +0 / -0 72

TP Injections relieved burning pain & use cesamet

Hi Everyone

Thanks for all your support on the other thread. On Wed the burning pain was unbearable that I ended up in a Crisis Unit

until today. I did see that Fibro Dr that I was hoping to see in 3 months. He still remembered me from 2 years ago, as I was in his study. Yesterday he gave me neck block injections- trigger point injections.I have another appointment on Dec 19th and Dec 30th for more injections. It was so nice to finally get someone who listened and believed I have pain.

I had immediate relieve and I finally was able to sleep last night. The constant pain was non stop for 7 days straight, and I have taken time off work until next Friday afternoon and then we have 2 wk Christmas Break. I also went back on nabilone(cesamet) which controlled this burning pain for 2 years. It was my BIG Mistake to go off the cesamet b/c of the bad side effects. Now I think it was the hydromorph as I am still on that. I could not restart the cesamet unless a doctor's approval. He took me off the methadone, and I have my appointment for 2nd opinion regarding bipolar diagnosis. Now I will be able to concentrate, relax and do Christmas Baking and work on this depression CBT program. I am now looking forward to the Christmas Season and I will enjoy it very much.

I have to notice my warning signs before it is too late. I never know when it is time to go to the crisis unit. and NOT the hospital as the ER dr called a shrink on call and would not listen when I asked for pain meds. The pain clinic was waiting for ER'S call as there were no drs availble that day at the pain clinic. You see I was not safe at my school and my VP even called the pain clinic on my behalf. I know I still have a job, but twice now I was having problems, and both those times were due to the burning pain. The dr said I do not have nerve damage, it is my Fibromylagia. I am going to SLOW DOWN some in 2009 and monitor myself more closely.

PS: I am not sure what thread to put this on so I put it under medication. FYI cesamet or nabilone is a synthetic marijuana substance and that is what can only control my burning pain and now these TP injections will allow immediate relief. Thank You for listening and Happy holidays.....Windsy

15 years ago 0 +0 / -0 72

TP Injections relieved burning pain & use cesamet

Good Morning:

I did my WRAP- Wellness Recover Action Plan a couple of weeks ago and I have to scale it down. I need to look at it every evening to see if I am getting any warning signs. I know the depression signs such as isolation, not doing laundry, cooking, or cleaning apartment and very tired. Now I have to realize when I am too stressed out or doing too much. I have to listen to my body more accurately and my friends. You see, I have a tendency not to listen when people suggest I am doing too much. Every morning and night I am keeping a Mood Chart I created that I can show my doctors and therapist to see if I may be in for a hard time. I also have schedules I made but I need to follow them more closely. I definetely need to go to bed at 10PM and up at 7am which is 9 hours, and not eat junk food and have proper meals and eat breakfast as I haven't for years.

I want to work on this CBT program one week at a time, so I think I will start from scratch this week. I want to be able to read my books and understand what them mean and I am going to time my activities such as an hour at computer NOT 5 hours straight.

I intellectually know the wrap and what to do, but now I need to learn to put it into action. If my finances are secure enough, I think I will only do 4 hrs respite and 3 hrs YMCA After school program next year a week and my 30 hr EA job. I want to make sure I have enough time for exercise and time for myself. I would like to continue with Mood Disorders Social group with my friend and don't be alone by myself as much. I want to continue with stretching and relaxation classes, as I was not able to go for 3 weeks b/c of the burning pain.

These are my 2009 goals so I will be able to work and not go on disability and go to the pain clinic and receive my injections and do NOT go off the cesamet unless the pain doctor advises. I hope you all have a good day, and Thank You for being a great support for me.

Windsy

15 years ago 0 +0 / -0 72

Does STRESS cause physical problems?

Hi Everyone:

I hope everyone had a Merry Christmas and I hope you all have a Happy New Year.

I saw my pdoc this week and he mentioned that b/c of my early childhood and stress that i went thru may be the reason why I have been having burning in hands and feet now. My nervous system maybe causing me problems b/c of the stress I have endured during my life. I have been in the fight & flight mode during my childhood, and my body is fighting back as as hypervigilant when I was younger, as I was always on the alert for danger. He believes that the stress hormones may have caused me problems now with my nervous system. My wiring is mixed up b/c of what happened to me in my early childhood.

He did ASSURE me that this is NOT a psychological problem, as it is a real pain that I am experiencing. That meant ALOT to me, that he doesn't think I have a somatic disorder and he believes the mind, body and spirit are all connected. As my pdoc says "My Body is my friend" and I have to believe that and listen to my body and be nice to it.

On Christmas Eve I had to call the pain clinic and get the cesamet increased by the approval of the pain dr at the pain clinic. The pain has subsided down since I increased the med and I see the pain clinic on Dec 30, 2008. My depression is very prominet when I recieve the burning pain in my hands and feet that is unbearable. When the level of my pain is tolerable then my depression is mild.

I also have created a chart, that I enter in EVERY Day that shows my mania/depression/irritability/anxious and how many hours I have slept the night before. I use a system of norm, mild, mod, severe. I also put in the comment section on how I was feeling and what I did during that day. I showed this to my pdoc and he kept it for my file, as he found it helpful. This will also be valuable when I see another shrink in January for the second opinion to see if I do have bipolar disorder. This is just a modified form of the mood charts on the internet. I created this chart using Word Word Processing.

I also am starting to REDO this CBT depression program and I want to do it in one week at at time. When I started I did 4 weeks in one week and then stopped. I want to really understand this CBT program, and I also have a workbook on DBT that I want to use in between doing this CBT depression program. My pdoc also mentioned to work on mindfulness, I have info intellectually but now I want to use the information practically.

I also have to realize when I am in a CRISIS before I get in major crisis. I know it intellectually but not practically. I want to look into my 8 C's of my center which are: Calmness, Curiosity, Compassion, Confidence, Creativity, Connectedness, Courage and Clarity. I want to be aware that I want to use these 8 c's. For my next app't in 7 weeks I want to work on these 8 C's and do some drawing and scribbling before my next pdoc app't on Feb 10, 2009.

I hope you all have a great day, and I would be interested in hearing other people's view on stress and your body.

Thank You

Windsy

15 years ago 0 +0 / -0 72

Does STRESS cause physical problems?

Hi Rose:

I cannot give you advice on what to do as I am not a mental health professional. A good book I lent from our city's mood disorder assoc was Bipolar for Dummies. I also read " It's not all in your head" by Susan Swedo and Henrietta Leonard.

However I can tell you that me seeing a second shrink for a 2nd opinion was my shrink's idea. He felt that he did not have the expertise to diagnosis bipolar as he has seen me very low and not high as I was since July until on wellbrutrinxl in Oct/08. He has expertise in PTSD- Post Traumatic Stress Disorder and he is not sure if I am experiencing bipolar. I had a very insightful session on Dec 23, 2008 as we covered things about stress and how my wiring is made up.

However he has diagnosed me with Major Depressive Disorder for 12 years, off and on, as I was not on medication for 3-5 years, but now I have to go on wellbrutrinxl and lamictal. Thank you for remembering about my pain, and no one is taking me seriously about maybe having RSD.

For now I am just concerned that the trigger point injections are allowing the pain to be tolerable for the most part. Our city's pain clinic is terrific, and the nurse is so helpful. In December when I was off work for a week, I baked and I gave some treats to the dr, nurse and pain clinic as they were so helpful. It is nice to know that I have them in my corner for support. I also will be taking it easy in 2009. Only work 4 hrs of respite a week, and maybe 3 hours at YMCA After school program and my regular 30 hours at the high school as a special needs instructional assistant. In 2009 I am going to continue being a Nikken Consultant and recruting people to be on my team. I stopped for 4 months as I had no interest anymore but I want to get to the next level and start making money and being with people again. When I was in a mania episode it was no problem contacting and calling on people, now that the medication has mellowed me out, it is harder to have conversations with people about Wellness Homes and magnets.

I also want to monitor my moods and potential for crisis more closely and work on my WRAP. It needs to be condensed as it is too big right now. I am also working on a safety plan with my counsellor when we have time. Take care and good luck.

Windsy

15 years ago 0 +0 / -0 72

Meds allow you to function, but do you still have depression??

Hi There:

I have a question, now that I am on wellbrutrinxl and lamictal my mania and mostly depression has alleviated. However how can I go for a 2nd opinion to another shrink on Jan 5, 2009 when I am not experiencing the symptoms any longer. I do have a write up of what I was like from July to when I went on the meds in Oct/08. Would that be enough to show her that the wellbrutrinxl allowed me to wake up within a week. I only was having very bad thoughts because of my excruciating burning pain in my hands and feet. When the pain is tolerable I am able to have a relatively normal life and not have very bad thoughts. However, now that I am on meds, I don't know if I really have a bipolar disorder or major depressive disorder. I am hoping the 2nd shrink, that my first shrink recommended will ask the right questions and still be able to come out with a diagnosis. I would be interested in hearing other peoples opinions. Thanks Have a good day.....Windsy. I am now redoing this CBT depression program and I am on part 2 of goals. I am going to revise my goals to be in smaller junks.

15 years ago 0 +0 / -0 72

Online self esteem program

Hi Everyone:

I was browsing through the internet looking for information on "inner child" and I found an interesting site. It has LOTS of information but there are strategies on recovery from low self esteem. It is based on a 12 step program for self esteem and I have started the program and it is very similar to CBT and what we are learning on these sessions.

There is a self esteem inventory and information how to cope. There are many online manuals that you can read or print. Take Care and I hope this information will help others as it is helping me.

Windsy

15 years ago 0 +0 / -0 72

Online self esteem program

Happy New Year Everyone:

Thank You for everyone being here for being a support for me during these difficult times. I have decided to work on mindfulness meditation and work on stress management strategies for 2009. I went to my local health clinic to go for counseling on stress management, unless they think I am seeing too many professionals at this time. I intellectually know what to do but I don't seem to put it practically. It took me MANY years before I could deep breathe or even feel comfortable breathing. I need to monitor myself and not do too much and be aware of my triggers and warning signs like my WRAP indicates. Take Care Everyone. I received about 5 trigger point injections yesterday in my neck/shoulders and back and the burning has subsided down somewhat. I even enjoyed my massage today as he worked on my jaw, TMJ, and I was able to cry which I could not for about 3 months. I have been holding back as I have been numb emotionally for a long time, now I have to let things come as they come. I have to notice what is happening with my body and emotions and do not lay judgement on them.

Windsy

15 years ago 0 +0 / -0 72

Online self esteem program

HI Goofy:

Thank You for that information as I have not read that book yet. Thank you for replying to me and I hope you had a good new year. Take Care....I am now on section 5 of the CBT program, but distortion of my thoughts is hard for me to really understand so I will be going slowly on this program. Windsy

15 years ago 0 +0 / -0 72

Update on Windsy Jan 05, 2009

Hi Everyone

I hope you all had a good weekend. Today I went for my 2nd opinion and I do have hypomania. I have bipolar2 but that is not all who I am, it is just a label. The pdoc said to continue on my meds as they work for me and pace myself and concentrate more on the present and here and now. She said welllbrutrin is an antidepressant but for some people it does have an effect on your mood, such as what happened for me. I woke up within a week being on the medication. My pain level in hands and feet is about a level of a 4 and tomorrow I start back work at the high school. I really haven't been back to work since Dec 10, 2008 and I know it will be a very good day. I miss my students and colleagues and my teacher. I hope you all take care and have a good week. This week I want to continue working on my negative thoughts and distortions. I also will read one book at a time on mind, body, spirit how Fibro is all connected to stress etc....Then after reading this book I borrowed from Fibro Society I will start doing my self esteem workbook. In therapy my counsellor and I have decided that if we are working on a topic that I have a book for I will bring it to therapy to work on it. I will NOT work on the books at home by myself at this stage. Then next week my therapist will discuss with me what homework I could do. My therapist liked the idea that I did a thought record when my therapy appointment was mixed up and how I reacted about it after I thought about it. The CBT strategies are being used by me. Thank You for all your support

Windsy

15 years ago 0 +0 / -0 72

Update on Windsy Jan 05, 2009

Hi Wildcat

Thank you for being interested in how I am, I really appreciate that. I feel much better that I have a diagnosis and I am glad I went for the 2nd opinion. I could have just had the diagnosis with my first shrink since he knows what he is talking about. Yes I will see my original shrink on Feb 10, 2009 for 30 min with an update. Because of my support team I am on lamictal and wellbrutrinxl and that helps my moods. My pain is tolerable about a level of a 4, but i need to do my neck exercises more faithfully than I am. I also am very glad to be back at school and people seem to be happy to see me. I am determined to NOT let Fibro flareups get in the way, and I am working my 4 jobs and NOT go on disability. I hope you have a good week Wildcat, and I am glad you are feeling better. Take Care.....Everyone have a great wknd. Windsy

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