Oh matt, I understand how this news can add stress to your life. It's natural that the news will initially create added anxiety.
There's not much you can do about it though, other than monitor things and live your life to the fullest. If they expect it to be slow-growing and want pictures every six months, that should help you relax a little.
A friend of mine went through this four years ago and it was resolved very successfully. Yours can be as well. Try not to indulge in 'what if' scenarios that cripple your life, ok? Give yourself permission to be positive about its outcome. Keep posting.
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Anne-Marie, Site Administrator