Hi Everyone:
I hope everyone is doing fine, and better than I am. I see my GP on Monday and I am asking for 3 weeks off to recover and relax. I was doing too much and my pain is over 10 continually in hands and feet, burning, stabbing pain. I spoke to my pricipal and she thinks I need time off, b/c the pain is so bad I cry and I am not helping anyone. I have to stop working at YMCA After School program, respite and my co-op ed class. .
In fact I was NOT taking the hydromorph every 4-6 hours and for 3 days I thought I was feeling better until Thursday. The pain was OVER 15 and the reason was it was not in my system anymore. Apparently I have to take the 2mg of hydromorph regularly or receive the pain. The drugs are making my brain foggy and I don't remember things and all I want to do is sleep, and I have to keep lists everywhere. I have charts for when I take my meds, my routine etc.....I also will work condensing my WRAP I did in 3 days.
I did go to the pain clinic on Thursday and they are helping me with the bad side effects of the narcotics and referring me to a specialist for Fibro. He apparently has a waiting list that I am on and we will see what he says. In fact 2 years ago I was in his study on Nabilone (cesamet) trial for fibro and it helped me. In Sept I tapered off the cesamet and have stopped completely and now have the bad burning pain again. Advice of pharmacist and approval of my drs. It may be related and the injury I had at work on Oct 08/08. The pain clinic have also put me on 1mg of methadone, twice a day, as it doesn't have the bad side effects as the hydromorph. I have decided that driving is not a good idea, so I am getting picked up by people or taking the bus. These meds are leaving me drowsy, dopey and dizzy etc....and i am not that alert. Tonight my sister's family picked me up to see the Christmas Lights in Wonderland Park in my city and it was a nice evening with mini donuts and hot chocolate. I will update you next week to let you know if I did get the time off and then I will meditate, breath deeply and stretch and exercise and catch up on my reading and do this depression CBT program. I hope you are all well, please take care. Thanks for being there for me. I would recommend checking with your mood disorders association in your city to see if they have a social group that has activiities and gets free tickets or discounts for activiities. My friend found it, and we go together and keep each other accountable. Windsy.....