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11 years ago 0 +0 / -0 2508

Hi Davit,

Good morning, so nice hearing from and talking to you again..and like wise enjoy your new used tractor and your down time too in what ever form it takes..So sorry to hear about the meds making you sick..We have been playing with my meds too for a few months now..I have noticed that my bp stays down without my bp meds now that I quit smoking 5 months ago and am on a low sodium diet. I was supposed to start a new bp med this month but decided to give the meds a break and see what happens. I don't have the edema that the meds caused now which means it is easier on my heart and lungs and in turn I don't have to take as much Lasix which means I don't have leg cramps all night long now ..It is a vicious cycle when dealing with meds..Sometimes the cure is worse than the ailment it seems. I see the doc. the end of this month for a bp check and will tell her how it's been going then after that it's a follow up ultra sound to see how my kidney is healing after surgery and a visit with the surgeon. Than, I am hoping to be able to get a break for all the doc's for a good long while..I hope you are on the mend and everything is healing well for you too?

Well now on to happier things..You and Sunny should be baking pies soon and having a nice spot of tea to go with that pie soon..I sure love a nice cup of strong tea in the afternoon around 2 pm..It was a something I did with my grandmother when I was a child and have pretty much enjoyed and held on to all these years later. Tea and toast. One of the simple pleasures in life that I enjoy from long ago..

Have a nice drive to get Sunny tomorrow.. and have fun playing with you new used tractor on Tuesday this week too...As for me I have some sewing to catch up on, for class this week...or who knows I just might take the stress off and take a break from class this week and play Hooky this time around..That's sounding pretty good to me and todays what counts anyway..

Have a great day Today.

Till next time,

Red...

11 years ago 0 +0 / -0 6252

Hi Red.

There are times when I overdo it too. Like today, it is going to rain and I had some outdoor work to do before it did. It annoys me that I have to juggle what I have to do verses what I want to do. I've accepted that I will be sick for a couple of days when I do overdo it. Still it annoys me that I'm not the man I used to be. On top of that I'm taking Methotrexate for my Arthritis against my will. It didn't work last time and it isn't going to work this time either. The Doctors basically ganged up on me and told me I had to. In a while my monthly blood tests will show it isn't working and they will give up. In the mean time it gives me sore muscles and nausea.

I guess there will be lots of rose smelling times for a while. Still there is stuff that has to be done no matter how bad I feel. So it is a juggling act doing different things so I don't overdo any one thing. Tomorrow I have a two hour drive to get sunny at the bus. Yes we are a bit isolated here but the fall colours are nice so I will enjoy the trip. Tuesday my new used tractor comes and come hell or high water I intend to get on it and play. It might take some pain killers to do it but since My ticker is pretty good all I should get from that is a few days after reading and drinking tea. This is nothing new, for years I have been cycling one good day, one bad, one good etc. Enjoy your down time what ever form it takes.

Davit.

11 years ago 0 +0 / -0 2508

Just wondering how everyone else's day went..Anyone else push to hard today?

As for me today I did bite off a little more than I should have and went two swap meets instead of one, plus stopped by a fabric and craft store on the way home that I had never been to before..Oh ya and of course I had to stop by Walmart for some orange juice and a extension cord for my sewing machine too..Mind you I got a lot done and had some fun but it was a bit to much in one day and I made myself a bit sick. You would think I was afraid I would never leave the house again like before..I have got to stop this over doing it and listen to my body like I should..When I left today to go out I knew I wasn't feeling well and was having problems with being dizzy, off balance, and nauseous and that I needed to take it easy today but I over did it and pushed to hard again. When will I start listening to my body and stop pushing so hard. All things in moderation is something I need remember to do and stop before it goes to far..

Anyway I am sure glad to be home now in the peace and quite. I will be resting for the rest of this evening and tomorrow too I guess because I over did it again..My Next goal is to learn when to stop and to stop before I do anymore damage to myself..Starting with some self talk...

Stop and smell the roses Red..You hear me!

11 years ago 0 +0 / -0 2508

Davit, Hugs, Shari, and others reading here..

Lots of people do I bet..I am not able to get everything done that I want to do anymore..I have had to let things go a bit and lighten up on myself a little this last year..I am going to start telling myself it's ok to not be able to do it all and that the world won't come to a end if I can't do it all anymore..even so this talk is easier said than done I know and yes I do find myself frustrated over not be able to do what I could do before..I have been starting to take a long hard look at myself and my life lately and have decided that I need to prioritize my life a little differently now. I have a very good life and I need to begin to really appreciate that fact and also realize that I am still able to do lots of things that I like doing..The all or nothing thinking has got to go for me now at this stage in my life..if I want to really enjoy it..

I am not trying to tell anyone else what to do here. This is just what I am trying to do now and not what others have or need to do..It is my journey that I wanted to share and if it helps someone else I am happy. We all have our own journeys to experience in our own unique way and if sharing them helps, than all the better..

Red...

11 years ago 0 +0 / -0 4027

Thanks for helping Davit. I wanted to take the afternoon to think about this, but your insight here is probably all that's needed.

Shari,

What hard is the ability to keep your senses since the heart wrenching decisions that have to be made, like long term care, are best made when you're on level ground. As a caregiver, I find I'm sometimes dancing as fast as I can, or tip toing around something, or walking through fire or walking a tight rope so it takes a lot of fancy footwork. I've learned to just repel some things.

I was reminded by a geriatrician that our parents know all our "buttons", so I was going to draw a diagram today to figure where they are! On the other hand, I wish to be vulnerable.

I wondered if I could learn that training which professional caregivers in institutions have, but we differ in a distinct way. We can't walk away from the "job" after a shift, and go to an accepting community.

So I suppose I'm supposed to keep building a community, and make a back up plan, I was told.

Let us know how you're doing Shari. I was told "I'm a person too", and that really resonated with me

11 years ago 0 +0 / -0 1853

Thanks for sharing your insight and perspective Davit. It is helpful for many of us to learn or be reminded of what it is like to live with particular health conditions. It helps change our understanding and mode of communication with others in a positive way.

Shari - I imagine there will be some 'culture shock' and growing pains while adjusting to your new role and new surroundings, but hopefully the thought of giving up and going back home will dissipate!

11 years ago 0 +0 / -0 1071

Thank you so much Davit, for your insight. I try to put myself in her shoes and I can't imagine how she stays so well tempered most of the time. She tries hard. I think it's because in the past, we were more at odds, and I think "her old self" is coming back, but it's not. She got her happy mood back and fixed me a large bowl of strawberries. I know she was sorry and I was sorry I took it wrong. I appreciate your compassion. She also is on medication for high blood pressure and pulse medication (I think it's heart medication for a racing pulse). I know they have to put up with my menopause mood swings. One minute I'm crying and the next I'm okay. Hopefully, I only have to put up with the hormonal imbalance for another couple of years. It's good to know the physical facts of what another person is suffering, so I will have more compassion next time, not take it personally, and know that it is the pain talking and not my sweet Mother. Again, thank you Davit for putting it into the proper perspective.

Shari

11 years ago 0 +0 / -0 6252

Anxiety, frustration, anger and elevated blood pressure are bed mates of any form of arthritis or chronic pain but especially with Rheumatoid since it manifests itself as lack of ability and range of motion more than pain.

Imagine what it is like to lose your independence and depend on others, it sucks. On top of that many Rheumatoid sufferers have flu like symptoms 24/7 and immune suppressants make it worse.

If you live with someone with RA you have to be the strong one and accept this personality change. Believe me they still love you just as much as they always did, they just sometimes can't help themselves. Don't for a minute think they don't feel bad every time it happens.

On the other hand if they were always bad tempered and inconsiderate you can always put them in a home.

The people there sometimes are actually trained to deal with this.

Davit.

11 years ago 0 +0 / -0 1071

Well, an interesting turn of events. Will post it on my Shari's Move thread...

Shari

11 years ago 0 +0 / -0 1071

Hi Hugs,

I wonder if you could help me. I wonder how you cope with your care giver role? I am in that situation and I went out to get a strawberry and my Mom behaved controlling and went into a whole thing about how she'll wash the strawberries and doesn't want me touching them. I just didn't want to argue about fruit, and with my hormones, I just went to my room and cried. My Mom has rheumatoid arthritis in her hip and she said it wasn't about the strawberries, she's just in a lot of pain. So, we make a great combo. Maybe doing a life change in the middle of menopause was a stupid thing to do. I just want to go back home, but it will be back to a controlling spouse where I had to explain myself and account for four missing slices of bread. I just want to be loved and I all I get is grief.

Shari

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